Guest Post: Seasons of Fibromyalgia (Part 2)

This is our last guest post for a while.  I consider the summer “Invite to Write” a huge success!  Thank you to all that participated and I will definitely do this again next summer. Mia wrote us a lovely post earlier this year called Seasons of Fibromyalgia.  (You can find her bio there.) This is her follow up post concluding her thoughts on seasons.  She wrote these posts for me just wanting to share her heart and discovered she loved writing her thoughts so much that she started her own blog.  You can visit her blog here.  Another sister in Christ and fellow fibromyalgia sufferer reaching out to help the hurting –  I LOVE IT!!!! 🙂  I hope you are encouraged by Mia’s thoughts today.  Show her some love in the comments and go check out her new blog!

God’s thoughts to me

But now, O Jacob, listen to the Lord who created you, O Israel, the One who formed you says,” Do not be afraid, for I have ransomed you, I have called you by name, you are mine. When you go through deep waters, I will be with you. When you go through rivers of difficultly, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you. For I am the Lord, your God, the Holy One of Israel, your Savior.”(Isaiah 43:1-3, NLT)

Seasons of Fibromyalgia (Part 2)

My home country, South Africa, this year experienced an unusually cold and severe winter. Fortunately spring has officially arrived with the beautiful month of September. All around us new life is slowly blooming and the air is filled with vibrant expectancy. The yellow finches have returned to our garden and are busily building their nests. Their loud chirping and singing are like a joyous ode to spring.

Winter is stubbornly refusing to release us from its grip on this first spring day. A gale force wind is howling around the corners of our house. But its sorrowful moaning and groaning are slowly but surely replaced by a bubbling new spring song of joy.

My previous post ended when my spring arrived with a diagnosis by a rheumatologist in Port Elizabeth. Unfortunately this doctor was not very knowledgable about the treatment of this illness and sent me on my way with only a prescription in hand. I was still clueless about this condition and the fierce battle between the winter of depression and despondency and the spring of new hope and courage was raging in my heart. I was at once filled with an odd mixture of dread and expectancy.

Dear Ones, I am convinced that this is such a wonderful opportunity for us to stretch those faith muscles and to allow our Lord to lead us forward on this journey. I want to encourage you not to condemn yourself when you experience this cacophony of weird and unfamiliar emotions. Condemnation is not from our Lord and is so destructive. Rather focus on your Pappa God, our Heavenly Gardener, who is weeding out all the weeds, thorns and thistles from the garden of your soul and the new beauty He is creating in its stead.

I dared to dream again and dove head first into extensive research on possible treatments and cures for FM/CFS. I gathered lots of information and it did not feel as if I was fighting a phantom in my mind anymore, but a real enemy with a real name. I still had no idea that there was no known cure for this condition and was convinced that I would be able to beat this foe. There were so many advise and treatments available and each one brought new hope to my heart. With so many options available, how could one not be cured!

I also discovered wonderful online support through blogs like Ann’s and it brought so much comfort and relief to my heart. Every time winter was trying to re-assert itself through despair, the naked honesty and coping advice I received through these links were precious gifts from our Father. I cannot over-emphasize the importance of the support of other travelers on this FM/CFS road, but crucial to this road is our Lord Jesus. He is the One who carries us, our Strength and Support. He cares deeply about everything that happens to you.

Realizing that there was no cure for this illness yet, launched me onto a new road during my spring journey. I found it so difficult to wrap my mind around the possibility that I could forever, whilst on earth, suffer from this pain and exhaustion. I tried so many different treatments: supplements which helped a bit, but became too expensive; diet changes that caused me to lose weight I could ill afford; an exercise regime that actually made the CFS worse; prescription medications, etc. I even went to a pastor to undergo a deliverance. He apparently was an expert on this field. I had no previous knowledge on this kind of thing and was prepared to try anything legal. I realized that these people only meant well and tried their utmost best to help me, but it nearly drove me over the edge of reality straight into the arms of insanity when they told me that demons of death and insanity were trying to kill me. This experience caused me so much spiritual harm and it took me a long time to recover enough to be able to share this with you. The extreme terror and fear I experienced caused me to completely lose my appetite and my weight plummeted down to 47kg.

The spring in my heart made way for a very hot and dry summer as disappointment followed every unsuccessful new treatment. I also endured so much uncertainty and self-doubt as it seemed as if no one actually believed in the legitimacy of this condition. Dark, frightening thunderclouds of terror and fear (and all their evil counterparts) started to suffocate the last hope in my heart. I was brought to the brink of a complete breakdown as lightning flashes of pain relentlessly ripped thorough my body and sanity. The only thing that I was able to do, was to cling unto our Pappa God for dear life. He was my only anchor and lifeline and, just at the right time, He brought repeating storms of crying. Thousands upon thousands of tears flooded away all those terrible emotions and quenched the fire that was consuming my life. Our Pappa brought only good out of this as He was drawing me closer and closer into His loving embrace. He brought a new Christian doctor into my life who taught me the golden rule of pacing. We worked together trying to find the right combination of medication to at least alleviate some of my symptoms and we managed to get many symptoms under control. This dear, patient man prayed for me and listened to all my aches and pains, as well as to all my sorrows and woes.

Our Lord then escorted me into the beautiful new season of autumn. The colors of the leaves of my self-efforts changed into rich shades of golden browns and yellows, coppers and burnished reds. As trees are stripped of their green foliage during winter, I was stripped of all my self confidence and efforts to bring about healing to my life. I personally had to experience the loss of the “self” life before I was able to receive and experience new life in our Lord Jesus. I realized then that only as I allow our Lord to live His Life in and through me, was He able to produce delicious fruit through all my seasons of FM/CFS; not only for my needs, but also for everyone around me.

It has taken our Pappa quite a fair amount of time to teach this stubborn child of His that He brings beauty only out of ashes (and not self-effort), and strength out of weakness (and not out of striving). Now, whenever my heart experiences a cold winter or dry, hot summer and not much life is visible from the outside, I look forward to the new hope, new trust, increased faith and dependence that our Lord is creating in my heart.

When you are overwhelmed by all the different seasons and fluctuating symptoms and emotions, remember our Lord Jesus’ gentle invitation: ” Come to me, all of you who are weary and carry heavy burdens, and I will give you rest.” (Matthew 11:28a, NLT) Your Pappa will, if you allow Him, use every season you experience for your ultimate good and His wonderful Glory.

Thank you so much for sharing my thoughts. Ann, I so appreciate the opportunity you gave me to bring my thoughts on all the seasons of FM/CFS to the only logical and possible conclusion, a life lived in our Lord Jesus.

Hugs and blessings.

Thank you MIa for sharing you heart!  You blessed and encouraged me and I know you have blessed others as well.  Don’t forget to visit Mia’s blog hisnlovingembrace.wordpress.com.

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8 thoughts on “Guest Post: Seasons of Fibromyalgia (Part 2)

  1. Dearest Mia, Thank you so much for sharing your seasonal journey with us. In the past 25 years I too have been through all of these seasons of fibromyalgia and chronic fatigue. I have tried everything I heard of as well and I don’t know how many times I have determined not to fling any more money at this issue (until the next thing comes along – ha!). I have found it best to just turn each day over to our loving God and rely on his strength. May you know his presence every day in your struggle. Blessings, Kathy

  2. Hi Kathy
    Thank you, so nice to talk to you again. Yes, dear friend, I agree that nothing is worth comparing to the privilege of living everyday in the presence of our Lord Jesus. I need to admit that suffering taught me to do just that, in complete dependence upon Him. That is a privilege I would exchange for nothing in the world, not even good health. Thanks again for encouraging me. Blessings

    • Hi Jennifer
      Thank you! Certain things are not easy to share and this was one of those. I appreciate you taking time to read and encourage me. Blessings

    • Dear Tanya
      Thank you, dear friend! I think it is more a case of our Shepherd breaking this lamb’s legs and carrying me home around His neck. Not nice looking from the lamb’s point of view, but in the end, when He bounds up the wounds with His love and presence, you realize that you will not exchange it for anything in the world. Yes, dear Tanya, I love Him more than life! Blessings.

  3. Mia,

    Thank you for what you’ve written. It touched me. Deep depression and discouragement can overwhelm us at times but as you’ve reminded us, clinging to our Father is just about all we can do. So thankful that you’ve found a doctor who is sympathetic & somewhat knowledgeable. I think that can be so affirming and helpful for us — that we are not imagining this — even though most of us do not look sick/ill on the outside. Thanks again! May God continue to uphold you with His righteous right arm.

    In Christ,
    Shelley Kemp

    • Dear Shelly
      Thank you for allowing me again to share my thoughts with you. Your previous encouragement meant so much to me. Yes, dear friend, resting in our Pappa’s strong Hand is about all we need to do all along our journey of life. Thanks again!
      Blessings

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