Given that both fibromyalgia and chronic fatigue syndrome do not yet have a known cause or standard treatment, there have been a variety of so called “cures” and “no fail treatments” that have emerged over the years. I am a believer in staying up to date on the latest research and trying new things to help alleviate symptoms, but if each of us tried all the latest fads and ideas for treatment that is ALL we would be doing. It would be exhausting. So, this post is not necessarily a tip, but a way to share with you what I have tried or thought about trying. I’m not talking about certain meds or supplements, but actual treatment plans that claim healing. I would love for you to share with me what theories you have bought into over the years that promised relief. Some of you may have even tried some CRAZY stuff, that you can laugh about now! 🙂 Or perhaps you’ve found something that works! I’d love to hear it!
1. Something I tried.
Have any of you heard of the guaifenesin protocol by Dr. St. Amand? It is a pretty convincing sounding treatment. There are hundreds of testimonies of people who have used the treatment and have found what they call a “reversal of symptoms”. If you’ve never heard of it or would like to read more about it you can visit their website. fibromyalgiatreatment.com/GuaiProtocol Dr. St. Amand theorizes that fibromyalgia bodies cannot rid itself of phosphates, so they build up in body tissue and cause pain, fatigue, and all our other symptoms. Taking guaifenesin supposedly helps our kidneys get rid of these phosphates and reverses the damaging effects of fibromyalgia.
Anyway, my mom and I tried this treatment for over 2 years back in the 1990’s. We were very diligent in following the guidelines and rules (there are many!), but never found the “cure” that so many have claimed. I’m not calling it a hoax by any means. If it has helped hundreds maybe thousands of people with fibro and cfs, then I am all for it. It just didn’t work for me. It is not an expensive treatment and they are in process of trying to get some published studies done to prove their theory. If that happens, I will be tempted to try it again. Any of my readers have any experience with this protocol?
2. Something I strongly considered trying.
There are so many claims out there to cure fibro. Of course, you have to be skeptical and wary of those who are seeking to take your money, but what about those that don’t want your money, they just want to help? A few years ago I visited this website, fibromyalgiafullresolution.com and was fascinated with what I read. This man is a massage therapist who uses a systematized protocol of frequent, neuromuscular massage to cure fibro. Claiming something about the spine and soft tissues and the connections to our brain and our muscles. It’s all pretty scientific sounding, but made sense when I read about it. He is working with a retired Doctor who has agreed to be his credibility and sounding board for this treatment.
I was so intrigued by his ideas and website that I sent him some emails and inquired about his treatments. I ended up paying him for one hour of his time and we chatted over the phone. (He is in Ohio and I am in Florida.) He was easy to talk to and answered my exhaustive list of questions. Could he be on to something here? He has many testimonies that claim they are “cured”. His per hour treatment cost was very reasonable, but I would have to travel to see him for an extended period of time. He’s clearly not in it for the money, so he just wants to help people. I strongly considered leaving my family for two weeks to go see him, but ultimately decided against it. I concluded that if his theory carries any weight, his plan for a published study and a book would eventually emerge. If and when that happens, then I’ll buy into it. It was worth looking into and I’ll keep my eyes out for that study!
3. Something I would like to try.
My latest interest is in the Fibromyalgia and Fatigue Treatment Centers that are popping up all over the country. Have you heard of these? Here’s a link in case you are interested in reading about them. www.fibroandfatigue.com (Dr. Teitelbaum is one of my favorite resources for fibro and he is involved with this organization. His website is endfatigue.com.) They claim that by doing all kinds of blood work, surveys and testing that they can tailor a treatment just for you that will reduce your symptoms, and maybe even eliminate them. They believe that every case of fibro and cfs is different and can be caused by different things, so you need an individualized plan. Again, hundreds of testimonials claiming that this works. If I had the money and a center near me, I believe I would give this a try. Closest one to me is in Atlanta and that is a five hour drive and raising five kids is not cheap – I don’t happen to have an extra $5000 laying around! 🙂 This is definitely one I am keeping on my radar though. Maybe someday…
When you’ve been ill for as long as I have, you wake up everyday hoping that sometime in my life span they will discover the cause and cure. In the mean time, I let myself daydream that one of these claims for improvement in quality of life will actually work. Which ones should I try? or invest in?
I’m curious to know, if any of you have tried or read about these and other treatments that claim to “cure” you of fibromyalgia. There is a ton of stuff out there if you dig around long enough. Anyone want to share their experience?